The paperwork never ends The Archives
January 1-15, 2005 Archive Index CHFpatients.com

Jon 1-1     end of an era, who knows what's next
 
Norma 1-1     should I drink more fluids with pneumonia drug?
 
Ben B's 1-2 reply to Jon's 1-1     thank you and more
 
Sandy's 1-2 reply to Jon's 1-1     will miss this message board
 
Roger Hughs' 1-2 reply to Jon's 1-1     thank you
 
Rhonda's 1-2 reply to Robert's 12-31     I am so sorry to hear this
 
Amelia 1-2     seek tilt table test information
 
Clara D's 1-2 reply to Jon's 1-1     thank you
 
Tom S' 1-2 reply to Jon's 1-1     best wishes
 
Jill 1-2     other message boards
 
Beckie's 1-2 reply to Jon's 1-1     sending donation, thank you for site
 
Barb N's 1-2 reply to Jon's 1-1     thank you for message board
 
Jon 1-2     final notes!
 


Jon, January 1, 2005 - Hello everyone. Well, my family and I are honored to have served so many for so long. When Jesus kicked me in the seat of my pants to start this heart forum over 7 years ago, I didn't want to do it. <g> That just shows that Father really does know best! The experience has made me a better person and I should be thanking you all instead of the other way around.
     Readers have supported this site since day one and I can't thank you all enough. I am sorry for discontinuing even a few parts of the site like this message board. However, with Social Security Disability payments stopping after this month, I now have to find a "regular" job - one that actually pays me every month. Running this message board is a privilege but I don't get paid for it and our family is still this site's biggest donor. We just can't do that unless I have an income.
     The non-interactive parts of the site will remain and I will try to keep them current. I am even now working on new recipes - hey, I like eating decent low sodium meals myself! I would appreciate readers e-mailing me new heart failure information to help me keep up. I will have less time to find such information myself. I'll put up posts today and tomorrow, but tomorrow the form for sending posts comes down and a few days after that, I'll roll all the posts into The Archives, where they will remain available and can be searched.
     I ask anyone who has considered donating to please still consider it. Without continuing donations, pages like The Manual, Nutrient Stew, Exercising With Heart Failure, and all the others won't stay online long. We do have to at least cover basic online and connection expenses and all donations remain tax-deductible since we are a 501(3)c non-profit corporation, complete with the services of an attorney and accountant to keep us on the level at all times.
     Thanks again, everyone. A special thanks to all the "old-timers" who have been helping me since even before I started this message board early in 1997 - I can't mention names for fear of forgetting someone, but you know who you are and I thank you all. I also thank a whole lot of healthcare professionals like Gino, Charlie Porter, Marc Silver and Anil, among many others.
     Most of all, I thank Christ Jesus, who has given me so many wonderful gifts that I can only quote James: "Every good gift and every perfect gift is from above, and cometh down from the Father of lights, with whom is no variableness, neither shadow of turning."

Get with the program laid out in The Manual and stick with it, guys - low sodium diet, aggressive meds treatment, regular well-planned exercise, no smoking or drinking, proper supplements (I added my recommendations to the top of each Nutrient Stew page), lose that extra weight, get and keep a good heart failure specialist, weigh every day to spot upcoming edema, stagger taking your meds to reduce side effects, and always keep a positive attitude! Use the links page to find other heart-related forums.
     I've come from an EF of 13% and a Vo2max of 13.5 to an EF of 55% and a Vo2max of 30, so I know it can happen. Never surrender hope and remember that it's largely up to you how well you will get. Some of you may never see such results because heart failure is impossible to predict but remember that it can happen! Go with God, one and all, and please check back in to CHFpatients.com regularly for updated heart failure information. If a sponsor or large donor finds us, we will re-open this message board immediately! Jon.


Norma, January 1, 2005 - Hi everyone, I wasn't feeling well and my daughter took me to my doctor. He said I have pneumonia. He put me on a strong drug and said it would be the same as being in the hospital with an IV. It says to drink lots of water, so what does a person do when fluid is retricted to a quart and a pint? My deep cough has loosened up, but I still feel pretty drained. nvl@pennswoods.net
 
Jon's note: Try increasing your fluid intake but only to 2 quarts a day until you can talk to your cardiologist about it, which you should do as soon as possible.


Ben B's January 2 reply to Jon's January 1, 2005 - Hi Jon, Thank you so much for all your service with this site. I don't think you can quite realize what a God-send (literally) this site is to a newly diagnosed person looking for a little help and hope who can't get any onformation out of their doctors except "you're gonna die."
     As a guy who went from a 10% EF on disability, getting dumped by his girlfriend when he got sick, to a guy with about a 50% EF and back to a great job (just recently married), I can only say that in many cases there is hope. In most cases there is at least hope of improving your chances.
     I know that although your EF is 55% you are not quite 100% in how you feel, but I hope you can find a suitable job or income. I personally feel so much better being back at work. Of course, it would be great if this web site could be your job. One thing I was wondering was if someone out there wished to maintain a similar forum with their own time and money maybe you could link to them someplace. Right now I don't have time. In fact, I only read the site every so often but I never know if I might relapse or need to be checking in a lot more.
     As far as all the data you collect, I think you are probably the only person who has the experience and drive to do that, but running a message board is really a matter of putting people together. The hardest part is to get it to a point where people can find it on the web. You could help with putting a link up. Of course, this assumes somebody else is willing to run it. Just a thought. Good luck in your future endeavors. bdbrinkman@juno.com


Sandy's January 2 reply to Jon's January 1, 2005 - Hi Jon, Good luck to you. I will miss this board a lot! bleuskiiisgrl@yahoo.com


Roger Hughs' January 2 reply to Jon's January 1, 2005 - Hi Jon, May God continue to bless you. You have been a blessing to me and "this" will be missed. I will keep checking though, as I have every day since finding this ministry. I do believe in miracles. Thanks for all you have done! rjd@mtco.com


Rhonda's January 2 reply to Robert's December 31, 2004 - Hello Robert, I am so sorry to hear about your lung cancer. I recently stopped smoking. Jon, I wish I was able to help the message board keep going. I have enjoyed the info I receive from reading the messages but alas, I am waiting to hear from Social Security and I think I'm going to have to fight them. Take care, Rhonda. arjai@woh.rr.com


Amelia, January 2, 2005 - Hi everyone, I was in a hospital for 2 days after blacking out the first time in my life. I have heart failure, stroke and a few TIAs, enlarged heart, and ASD. After tests, there was no sign of another stroke. My blood pressure ranged in the 80ish over 50ish, my EKG had some changes, and my heart beat was "jumping all over the place." My cardio doc thinks it could be vascular and has ordered a tilt table test and a monitor I heard this test is done before inserting a pace maker. I have no idea what is expected and am anxious. I am restricted from driving at this time until the outcome of the test. Any info would be greatly appreciated. Best to all of you. amelias@erols.com


Clara D's January 2 reply to Jon's January 1, 2005 - Hi Jon, I just wanted to thank you for making this message board possible. Reading about the experiences of others has been both helpful and encouraging since I was diagnosed three years ago. I will miss that. Hopefully, a sponsor or large donor will be found so that future frightened heart failure patients will be able to share their fears and learn from the experience of others. With deep gratitude, Clara. jdossett@nc.rr.com


Tom S' January 2 reply to Jon's January 1, 2005 - Hi Jon and everyone, Perhaps it was a step too far for you to take but anyone who knows your politics or religious beliefs understands why you took it. This web site and in particular this heart forum, was your baby born of a necessity not only to help you understand and cope with mortality, but to help others struggling to stay afloat in the same sea of doubt and uncertainty.
     As this new year unfolds none of us know with any certainty if we will see the dawn or even the setting sun from day to day. Thanks to dedicated and selfless individuals like you Jon, we do know that our chances of seeing the dawn of a new day increased immeasureably. We know not where your path will take you, a path carved out of unselfish love for your Lord and Savior, and in return I just know, although you probably cannot see the direction that path is taking, He will always be guiding your hand in whatever future tasks He may have for you.
     Keep the faith and may the road ahead of you be long and smooth. Above all, thanks for giving it your all, and for sharing your faith not only in your God but in your fellow human beings. You truly are a good and faithful servant. Dominus Vobiscum. Semper Fidelis. Tom Stocker, Gastonia, North Carolina. tstock1@bellsouth.net


Jill, January 2, 2005 - Hi everyone, Years ago when this board was down for awhile, we started an un-moderated forum for heart people to go and get the contact they needed. I'm not trying to take you away from here but to give you an optional place to post. The url is http://www.network54.com/Forum/20198 and some of us old-timers still post what's on our minds, like Tom, Sheryl and Jamie. I just wanted to offer an invitation to you. maddjak@hotmail.com


Beckie's January 2 reply to Jon's January 1, 2005 - Dearest Jon, I am mailing you a check from my year end bonus. My husband and I will pray for you daily. I took this diagnosis with such pain and agony, and your site gave me hope. I am better too, and there are no words to tell you how much it has meant. God bless and keep you and hold you close. Beckie. comerhanks@comcast.net


Barb N's January 2 reply to Jon's January 1, 2005 - Hi Jon, We wish it weren't so! I'm sure you did not reach this decision without a lot of thought and prayer, so I will not urge you to change your mind. I would like to thank you very much for your investment of time and resources and for reaching out. Many times the message board has proved to be both a morale booster and a good teacher. Take care Jon, and good luck with your job search. Again, thanks and God bless! protoplasm2@aol.com


Jon, January 2, 2005 - Hi everybody, Please don't forget to use this site for your heart failure information! The New Page, the links page, the contact page, and of course, The Manual are all good resources - not to mention the rest of the site! Please note that our links page has links to many other heart-related forums.
     We also still have a non-moderated chat room right here at CHFpatients.com! It is always available and hopefully people will make use of it. If anyone wants to have scheduled chats there, let me know and I will post the day and time you want to have your chat sessions. Just go to www.chfpatients.com/chat.htm. :-)
     This old message board could be reincarnated at some point and if so, I will send a notice to everyone on our mailing list, so don't forget to sign up for that. See www.chfpatients.com/lists.htm. This board has been a lot of work for me but it's been more rewarding and often, more fun, than work!

Don't ever forget - we CHFers can get better!   Jon.

All information on this site is opinion only. All concepts, explanations, trials, and studies have been re-written in plain English and may contain errors. I am not a doctor. Use the reference information at the end of each article to search MedLine for more complete and accurate information. All original copyrights apply. No information on this page should be used by any person to affect their medical, legal, educational, social, or psychological treatment in any way. I am not a doctor. This web site and all its pages, graphics, and content copyright © 1997, 1998, 1999, 2000, 2001, 2002, 2003, 2004, 2005 Jon C.

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